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Living With Clubfoot + What Shoes I Wear As An Adult

Yup, I was born with a birth defect. That sounds horrible, a ‘defect’ as if I was a broken baby. But yeah, both my feet were malformed at birth.

If you wouldn’t know, you wouldn’t notice anything weird at first – only the 12 cm (4’ 7”) scars on my heels & my small calves give it away if you look closely.

But it actually does affect my ability to stand, walk and balance. I am so jealous of my partner, who can literally hike on flip-flops.

Yes, I am fortunate I don’t have to wear orthopedic shoes, but I do need insoles in order to function correctly. And insoles don’t fit in sandals… so my feet are always ‘trapped’ in closed toe shoes until I found the PERFECT solution…

living with clubfoot adult

What is CTEV aka Clubfoot?

If you found this article via Google and you were born with clubfoot too, feel free to scroll past this section!

Clubfoot is a malformed foot or two malformed feet, pointing down and inward; officially called Congenital Talipes Equino Varus (CTEV).

So glad they have a fancy name for it, clubfoot (and especially the Dutch translation) isn’t such a great term. Since clubfoot is a birth defect, almost all articles on the internet are written for expectant or young parents: it’s all about the babies.

1 out of 1000 babies is born with clubfoot and men are affected twice as often as women (note: I don’t believe in gender binary, but the stats are what they are for now).

I’m one very special gal because I was born with bilateral clubfoot (yes, that’s double the fun). Although I think I’m happy I don’t have a “good” foot and a “defect” foot – I don’t think comparing the two would do me any good.

The exact cause of clubfoot is unclear, but it might be genetics in my case – my grandma was born with bilateral clubfoot as well.

My Grandma Blamed Herself For My Defect

Subconsciously this might be my biggest motivation to travel the world and prove to everyone I can do anything because my grandma couldn’t.

She was born in a time they break both feet in order to correct them. And although she did have very good years and did quite some hiking too, nowadays, she doesn’t go out of the house anymore.

Her feet hurt too much, and she can’t stand or walk for more than a few minutes. So when I was born, she was devastated.

She thought I was going to undergo the same fate, and she was to blame.

Better Treatment

Luckily for me, they don’t break feet anymore. My feet were cast shortly after I was born, in order to improve the position. After 5 months I got surgery, my Achilles tendon was extended through a Posteromedial Release Surgery.

Afterwards, I wore braces until the age of four, I did physical therapy for quite a while and went to the orthopedist for yearly checkups until I was about 13. I’m one of the ‘good’ cases, my surgery was exemplary, and I never needed another one.

Nowadays, there is an even better option to treat clubfoot: the Ponseti method. It’s a manipulative technique that corrects the foot without invasive surgery. It really only gets better!

Traveling & Living with Clubfoot

So how are my ‘defect’ feet doing? Well, I know my ankles are stiffer than ‘normal’ ones, as I cannot bend my leg/foot more than a 90 degrees angle (dorsiflexion of 0 degrees that is).

And apparently my feet are slightly less mobile, my balance is off (but I practice ballet for a long time, which helped me a lot) and I get tired more quickly.

But how would I know? These are the only feet I’ve ever known, and I can’t try out someone else’s feet for a day.

Therefore, I’m happy to say my feet are doing so well – the best I’ve ever known my feet to be! It definitely took some time to figure out what my feet need.

From a young age, I wear insoles (eeeew, right?). These helped me correct my posture – as the clubfoot treatment overcompensated a bit and I, therefore, got flat feet (yaaas, also incredibly hot).

Best Shoes for Clubfoot Adults

I’m going to share with you what I have found to be the best shoes for my feet. This is NOT medical advice, this is what works for me, and it might work for others who were born with clubfoot, but no guarantees.

Oh boy, did I walk in ugly shoes when I was young (no mum, it’s not your fault!), they all had to be sturdy and solid – two of the things you DON’T want as a kid.

The insoles I got as a child were ugly too – and they were light colored, so they got gross quickly. They also didn’t fit in all shoes, so my choice was always limited.

And still, I had persistent heel-pain and ankle-stiffness throughout most of my youth.

Very late in my teenage years I finally figured out flat shoes were causing my persistent heel-pain and ankle-stiffness: a simple ¾ inch / 2 cm heel was the solution and releases the tension of my Achilles.

Hiking Shoes

My mum was right about sturdy and solid, I find I need some ankle-support if I’m going for proper hikes. I LOVE walking in hiking shoes because they simply are really comfy – I can walk around for days without any troubles.

I walk in Lowa Renegade hiking shoes, which offer great ankle support and are slightly elevated. I actually have thicker insoles now, to lighten the heel-pain, and they easily fit.

But for the simple city exploring (& for taking lovely photos) I rather not wear those bulky shoes!

City Shoes

For simple city shoes, I go to a normal shoe store. I have a sort of checklist to check if they will work.

I make sure to get shoes that have heels of at least ¾ inch / 2 cm, and support my ankles (don’t have to me tight). I also press the back of the heel to check if they will be strong enough (my heels press outwards when I walk).

For me, normal sport shoes DO NOT work because they are too flat. I need high heel sport shoes (but I have to admit: I don’t sport).

Mae Klong Railway Market, Instagram Bangkok

My Insoles & SANDALS!

I’m based in Europe, in the Netherlands. I get my insoles custom-made by a podiatrist and I highly recommend this.

The insoles are made for my feet, to correct my posture, and because of my insoles, I can wear any shoe I want and still get the right support from my insoles (in combination with the elevated heels and ankle support).

In the Netherlands, I use Hallux Practices, a partnership between podiatrists all over the Netherlands. Hallux’s vision is to make the world healthier and happier – and well, that resonates with me!

These podiatrists treat people with foot complaints or complaints regarding posture and movement system (knees/hips/lower back), stemming from abnormal functioning and/or deviating position of the feet.

Insoles can be the solution to correct this, but sometimes shoe-advice or exercises are enough to resolve the pain. So amongst other things, they make amazing insoles. The insoles are classy (you can even pick colors) and fit in nearly all shoes (depending on the insole though).

Wherever you are located: go find a podiatrist nearby to get you your insoles. NOTE: this is only a suggestion for people who wear regular shoes and still experience pain. If you need orthopedic shoes, I’m NOT suggesting switching to insoles.

best insoles for Clubfoot Adults

The BIG problem with insoles is, you can never wear sandals. And believe me; on a nice stroll on the beaches in Thailand (& an average of 33° Celsius, 91 °F) you really hate closed toe shoes.

So when my Hallux podiatrist launched her partnership with FITS Footwear I got so excited. I know orthopedic shoes don’t have to be ugly nowadays, but well, they often are.

So I never thought about getting customized sandals before, until this opportunity arose. FITS offers models much like Birkenstock (aren’t I lucky those weird shoes are hot right now) and my podiatrist can simply send the design of my insoles to FITS, and they make the sandal with my insoles.

FITS collaborates with many Dutch and Belgium foot specialists, so having them made was never this easy.

My order took a while though, as I ordered them in summer (busy time!), but it was all worth the wait. The sandals are comfy and classy and my toes were never this happy: FRESH AIR!

Wherever you are located: make sure to check the options with your podiatrist! I know there are other options like sticky insoles. Call podiatrists nearby to ask what they recommend.

Thank you for reading my incredibly personal story. My feet used to be one of my biggest insecurities. But I’m so happy that they got me where I am today.

If you’re still struggling with your search for the perfect shoes, or want to share your story, please comment below!

You can also find me on my Instagram account @maartjehensen and send me a DM!

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I was born with bilateral club foot and THIS is how I am able to travel the world | Once Upon A Journey LGBT Travel Blog #clubfoot #bilateralclubfoot #ctev #travel #travelwithdisability #hallux #fitsyourfeet

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Sammi

Saturday 6th of February 2021

Hi Everyone, I was born in the 70's with club feet, had 2 surgeries my feet are flat, heel gives me trouble, ankle gets sore & fatigued. I recently gave up my 8hr shift work as it meant I was standing all day, not a good idea with these feet. love comfortable fashionable shoes but find it difficult to get both without the high price tag. My feet 'needs' change daily, I wear trainers or rubber soled ankle boots frequently inserting insoles then taking them out mid way of the journey. As I've got older & was doing a job standing up all day it has worsened my symptoms. I'm looking at exercises to strengthen knee & ankle. I daily have feet massages & stretches, I find that when I dont take my vit d & magnesium supplements regularly i end up with stiff ankles & knees.

Darrion

Saturday 30th of January 2021

All I can say is it’s amazing reading everyone’s Story’s ???????????? i thought i was alone.... i was born with club foot in my right leg and literally i can relate to all of you... I’m 23 years old and usually the pain doesn’t bother me much but lately it’s been getting worse and ive been having a lot of back pain lately....

Roxanne & Maartje

Wednesday 3rd of February 2021

Thank you for sharing your story! Sorry to hear about your back pain! Have you tried to get help from a physical therapist or doing some strengthening exercises yourself?

Cindy Fillmore

Wednesday 20th of January 2021

Hi, my name is Cindy and it is very difficult to find a current site to comment on about this subject. I was born with a club foot in 1966. My left foot was literally curled up into a ball. I had 3 surgeries as an infant and my youth. I wore "special shoes" up until 12th grade. I got harassed and bullied throughout my school days=even in high school. In my adult years, I went to a few orthopedic doctors who tell me...well it looks as good as it is going to get...wear an ankle brace and good shoes. For pain, I am only told to take ibuprofen. I get pain on top of my bad left foot close to where it bends at the ankle when I "overdo it" ....BUT its my good RIGHT leg I have the most issues with. I feel it is due to the fact that I have favored my good leg all my life and put most of my weight on the right side because my left leg/f00t has always been smaller and much weaker.. I get a lot of muscle aches/pains/cramps in my right leg, I have arthritis in my right knee and developed bursitis in my right hip. And what do doctors today tell me? Just get rest on painful days and take ibuprofen. So, since I get the same ol song and dance from doctors nowadays... I just push on, suck it up and go about my daily routine because I have always refused to let my clubfoot bring me down! Yep I am slower at most activities than other people with two good feet but I don't let it bother me. Thanks for letting me vent to those who can actually relate to my situation!

Roxanne & Maartje

Wednesday 3rd of February 2021

Hi Cindy, so sorry to hear about your situation and hearing that no one is able to help you properly. I'm sad that I can't do anything to make it better, but I hope you feel slightly better by getting this off your chest!

Vaughn

Sunday 8th of November 2020

Thanks for writing this. I am the eldest son of a family that had no prior clubfoot deformity. I was born with bilateral club feet. Luckily my parents went to an orthopod that performed surgery on me when I was just a couple months old correcting the issue. Later my 2 younger brothers were also born with bilateral club feet and the orthopod surgically corrected those as well. My dad has 2 daughters with another lady that is not my mum. One of those daughters has 2 girl children that were born with bilateral clubfeet. Those were corrected by the Ponseti method. I am 50 years old now. Clubfeet is totally 100% curable.

Roxanne & Maartje

Sunday 8th of November 2020

Thank you for sharing your story Vaughn! Happy to hear you are doing so well. It absolutely depends on the severity of the clubfoot, but I believe the care gets better and better!!

Geannine

Saturday 3rd of October 2020

Thank you for sharing I was starting to think I was crazy or weak or something. I am in my late 30s and recently I have found that most shoes don't help keep my feet from hurting, I can't even walk around one store without leaving in pain. I was born with clubfeet in both of my feet, I didn't need surgery, I just had casts on my feet as a baby to fix the problem. I am self-conscious because I know that if I stand up straight my right leg is slightly bowed and I have had knee pain in my right knee since high school. I also have flat feet. I have to have dress shoes for work and I had to find some that I could put an insole into, it was very hard to find dress shoes especially since my heel is narrow and so many shoes won't stay on my feet or become too tight. I also have to be careful because my feet constantly seem to want to land on the side of my feet and not the bottom. My ankles are extremely bendable. I can't wear heels anymore since they hurt too much from the start. Right now I am sitting with a heating pad on my right foot because it is hurting since I had to do a little bit of standing at work which causes pain more often than not.

Roxanne & Maartje

Tuesday 6th of October 2020

I am really so so sorry to hear about your pain! I have no idea what I might or might not be able to do in the future, but I try to stay in the moment and be grateful for what I can do. Have you ever considered getting insoles? It might help you with your pain - as it will correct your posture and feet from your soles and it can make all the difference!

Once Upon a Journey